Tuesday, April 21, 2009

Goodbye Vapotherm...

Jacob has come off Vapotherm! He still gets some respiratory support through a nasal cannula, but it's minimal. In fact, he is on 1 liter of flow and 21% oxygen (room air is 21% oxygen, so he is only getting the extra flow). AWESOME!!! The doctors all grinned today in rounds when the doctor (resident) read Jacob's report about his respiratory support. Jacob's doctor said, "Jacob is doing phenomenal! He really is a miracle kid!" The next steps for his respiratory support is to ween the flow of oxygen until he comes off completely. That's what we're praying for!

Jacob is still tolerating full feeds, but hasn't gained enough weight this week. The doctors want to see a steady amount of weight gain each day and Jacob isn't doing that. One reason is that he works harder to breathe than most of us do. His respiratory rate is higher than a normal infant, so he's burning a lot of calories just to breathe. He's taking full feeds, but he's using all the calories. They are increasing his volume and calories today to see if that will help. We need to pray that Jacob can "wow" the doctors once more and gain, gain, gain.

Please keep praying that Jacob will ween off oxygen completely and gain weight steadily. Thanks again to all our prayer warriors for hanging in there with us. God hears our cries for Jacob and is blessing us with being able to witness his hands at work. What an amazing journey we are on!

Also, please keep Kaden Kuehl's family in your prayers. Kaden is another CDH baby that we have been following through another blog. He passed away yesterday.

May you be blessed today!

14 comments:

  1. YAY Jacob!!! I am so happy to hear this! I've been praying for your little one and am just so glad he is making those baby steps!!! :-) Hope you guys are doing well. Much love and many prayers
    Ash

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  2. Flat-out amazing! God is showing up in incredible ways through Jacob. We are continuing to pray daily for him and will be praying for weight gain ... I'm willing to give him some of mine if he'd take it :)

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  3. That is awesome news!! I will pray he gains weight at a good rate this week. I will pass the request along as well. I show his pictures to Hannah. The other day she said, "Mama, baby Jacob got off all of his stickers. He is all better now." When I first showed her pictures of him she wanted to know why he had all those stickers on. I told her he was sick and we needed to pray for him. She told me when he got all his stickers off he would be all better. Just thought I would share Hannah's take on him. She loves to see his pictures. I will be checking back soon for more good updates.

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  4. Jeff and Julie, Stan shared your blog with me. Mary and I went through the same thing a while back, and Oliver is now a happy and healthy 2 3/4 year old. God does wondrous things. And everyone's prayers will sustain and heal you all. God bless. - Jim and Mary Agar

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  5. Way to go Jacob, that-a-boy! Keep up the good work!

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  6. Thank you God!!! He never ceases to amaze us. It is awesome that Jacob is on nasal cannula now. What a blessing to see & hear of his progress. What a testimony of God's amazing power. We will continue to pray for his weight gain and weaning from the O2. As a nurse I realize that 1 L is a pretty good place for him to start. That is awesome!!! Also, we'll keep the family you mentioned in our prayers because we know that only God can get them through the days as they deal with the loss of their child.
    In Him,
    Jessica Cook

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  7. fabulous news! God does amazing things :)

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  8. what an amazing accomplishment for jacob the miracle baby! wow!

    just said a prayer for the other family too.

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  9. prayers for weening off oxygen and plenty of weight gain. On it. Your family ROCKS!!

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  10. Praise the Lord! Keep working Jacob, you will be home before you know it! Still praying for your complete healing!

    Sissy

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  11. What a blessing it is to continue to see all the answers to the many prayers for sweet little Jacob and your entire family. I get so excited seeing the hand of God move in such a mighty way. Our God truly is an awesome God! We will continue to pray for your request and we will continue to believe for complete victory!
    Love to you all,
    Aunt Vicki

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  12. What a might God we serve !!!

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  13. Yay for God and for the Tuley/Winkler Family!!!!

    Love ya,

    Ryan & Family

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