Jacob has come off Vapotherm! He still gets some respiratory support through a nasal cannula, but it's minimal. In fact, he is on 1 liter of flow and 21% oxygen (room air is 21% oxygen, so he is only getting the extra flow). AWESOME!!! The doctors all grinned today in rounds when the doctor (resident) read Jacob's report about his respiratory support. Jacob's doctor said, "Jacob is doing phenomenal! He really is a miracle kid!" The next steps for his respiratory support is to ween the flow of oxygen until he comes off completely. That's what we're praying for!
Jacob is still tolerating full feeds, but hasn't gained enough weight this week. The doctors want to see a steady amount of weight gain each day and Jacob isn't doing that. One reason is that he works harder to breathe than most of us do. His respiratory rate is higher than a normal infant, so he's burning a lot of calories just to breathe. He's taking full feeds, but he's using all the calories. They are increasing his volume and calories today to see if that will help. We need to pray that Jacob can "wow" the doctors once more and gain, gain, gain.
Please keep praying that Jacob will ween off oxygen completely and gain weight steadily. Thanks again to all our prayer warriors for hanging in there with us. God hears our cries for Jacob and is blessing us with being able to witness his hands at work. What an amazing journey we are on!
Also, please keep Kaden Kuehl's family in your prayers. Kaden is another CDH baby that we have been following through another blog. He passed away yesterday.
May you be blessed today!