Wednesday, June 24, 2009
Sunday, June 21, 2009
Friday, June 19, 2009
Jacob is beginning to bring alot of things to his mouth...here's proof!
Thanks for checking in on us. Jacob is doing well at home. Doctors may want Jacob to stay on oxygen for a while. We have another echo on July 24th to see if his pulmonary hypertension has improved. They want him to stay on 02 until then for sure, but most likely they will want him to remain on it until the next cold and flu season is over (April 2010). It's a little cumbersome at times, but if it's what Jacob needs, then we can handle it!
Monday, June 15, 2009
Please continue to pray that Jacob will be able to wean off the oxygen when we are home and we can get him back to breathing room air again soon.
Here's a picture of our little man last night after a bath. He had WILD HAIR and has some chunky cheeks! He's a whopping 14 pounds! WOW!
Friday, June 12, 2009
We have been hovering around half a liter of oxygen for a couple of days and every time they try to ween down his flow, he drops his sats to the mid 80's and we have to come back up on his flow of oxygen.Once he's got his half liter, his sats immediately go back to 96-100. This is the only thing keeping us here at the hospital, and since he came in without oxygen, they want him to go home without oxygen. So...we are still here at VCH.
Please pray that Jacob will begin to ween off the oxygen! Thanks for checking in on us!
Thursday, June 11, 2009
Wednesday, June 10, 2009
Jacob's immune system is not the same as a normal infant his age. Any kind of infection, fever, cold, virus, etc. can cause him to work harder to breathe and can likely cause us to be hospitalized. Thankfully, it won't always be like this...just for the first year of his life, until his body can learn to fight off the infections better.
Thanks for the prayers. Please continue to pray that Jacob's recovery is quick, that his body will fight off the viral infection, and that he will be breathing on his own again soon. Thanks for checking in on us!
Tuesday, June 9, 2009
A week ago we went to the pediatric clinic because he was grunting and breathing more heavily. We wanted to check his saturation levels and make sure he was breathing okay. They said that his airways sounded clear and he was satting 97. So we left and went home. Throughout the week we had a couple other follow-up appointments with different specialist and no one identified an issue. Jacob continued to grunt more and was not acting like himself. We went to the ER early yesterday morning and he was having some severe respiratory distress. He was satting in the 70's and they said that his left lung did not sound good. We thought, GREAT...that's the one good lung he has...
They were able to stablize him in the ER and moved us to the PICU within a few hours. He is breathing with help of Vapotherm (8 liters), which has started to be weened and they said that he possibly has a viral infection that caused his pulmonary hypertension to elevate, causing him to struggle with his breathing. We don't know how long we'll be here or what the doctors plans are. Please pray that this will be a short stay and that Jacob can bounce back quickly!
Tuesday, June 2, 2009
This is the NEW TOY. Thank you Sheri and Jackie for the Baby Einstein Jumper...it's great! Jacob can sit in it (with lots of blankets wrapped around him) and enjoy the flashing lights and bright colors. When he gets older, he'll be able to move himself around and actually "jump" more. Although, he did enjoy it enough to get worn out!
This is how he started out in the jumper.
Then he went to this...
Within about 10 minutes he looked like this! Quite the progression...
Some of you may not know this, but Jeff actually built the helicopter in this picture. He did it in the months before Jacob was born. We took it out for some high flyin fun on Sunday.
Please continue to pray, as so many of you are, for Jacob's progress. At the doctor's office today Jacob weighed a whopping 13 pounds 3 ounces. He's still in the 10th percentile, but gaining. Doctors have said that he will grow more lung tissue within the first 8 years of his life and Jacob could be breathing normally in a year. That was great news for us! Developmentally he still needs to get stronger, but he's not too far behind. Thanks for checking in on us.
Many blessings to you!